Wednesday, December 25, 2013

A New Normal

I am sitting here, at my computer, a cup of coffee nearby.  Christmas music is on the radio in the background.  My three loyal companions are laying around my feet.  To them it is just another day.  Matt is on his way to Alpena, taking my restless parents back to where they are most comfortable.  Soon I will have to get ready to go to work.  My first shift in as an Emergency Room nurse on Christmas day.

Last week I called my mother to tell her that Matt and I would be there for lunch on Christmas eve.  I thought we would go, eat with them and then my parents could open their gifts.  Matt and I would come home and have our Christmas, since I had to work the next day.  Before I could lay out the plans to my mother she asked me "are you coming to get us and take us to your house for Christmas?".  Taken aback, as that was not my plan, I paused for a moment.  "That's what you did last year" she said.  Then she added, "we really enjoyed it."  Well, what was I to say to that?  "No, I wasn't planning on having you here?"  So, I said, "of course, we will be there to get you and we can have dinner at our house."  And, then, as I always do, I speak before really thinking.  "You can spend the night and we can take you back Christmas morning."  My mother actually sounded excited (which she doesn't much anymore) replied "we would like that."

So, it was settled.  I informed Matt of the change of plans.  And being the trooper he is, he smiled and said that would be great.  It isn't that we didn't want my parents here, quite the opposite.   We just both know how it is going to go.  He, being far more patient than I, can handle it much better.  Even though I vow to,  I always end up feeling short and then angry at myself for my lack of tolerance.

As dementia patients do, my parents live mostly in the past.  And not in my past, in their childhoods.  And nothing sets off my mothers long term memory better than a ride through the area she grew up in.  As we are driving through Ossineke, Spruce, Lincon and Mikdo, my mother is reminiscing about life with a father who sheared sheep and an older brother who played football, and was, in her mind, the favorite of her parents.  Of course we have heard these stories many, many times and can pretty much recite them along with her word for word.  Not to be outdone, my dad throws in a story about growing up in Pennsylvania.  But as his dementia progresses he gets stuck on the same story and by the time we reach home we have heard the very same tale about his father working in the coal mines five times.  And, they both tell their stories in stereo.  So everyone is talking and no one is really listening.

My dad is very comfortable in his little apartment at Turning Brook.  He has a routine that he knows and it is very hard on him when you take him out of it.   The problem lies in that my Mother loves to go out and very much enjoys leaving for a time.  Compound this by the fact that neither will do anything without the other, and my mother is the boss.  So, my dad has to come to my home when he really doesn't want to.  He won't sit, he paces, worries about the dogs getting hit by cars, and tells us that we leave too many lights on. He gets up and checks to see if his coat and hat are available because he wants to go "back to that place he lives."  My mom tells him over and over to sit down and be quiet.   But he won't.  He just walks around some more, checks on his coat and then tells us the story about his dad in the coal mine again.

So last night I suggested we go to the Christmas Eve Service at the Methodist Church.  It is the church that my parents attended for their entire married life and the one I grew up in.  I knew it was going to be a challenge with my dad.  But, I figured it would be a distraction for a while and I was really looking for something that made me feel like Christmas.  I had spent the last week feeling very melancholy about Luke and trying to be okay with the way things were now going to be.  My son is grown and my parents are like small children.  And the frustration was like a tight ball in my chest as I tried to tell my dad that we wouldn't be leaving for a while yet and he needed to take his coat off and sit down for a bit.

So we finally piled in the car and drove to the church.  My parents hadn't been there since we moved them to Kalamazoo almost three years ago.  I hadn't been there in I don't know how long.  As Luke's dad's family was in Kalamazoo, we didn't come to Oscoda for the holidays while he was growing up. My parent always drove down to see us.

As we walked into the church the first person I saw was Mr. Hunt.  He and his family are as much a memory of that church as the building itself.  He was in his choir robe.  I hadn't been to a church where the choir wore robes in a very long time.  My last church was not traditional and so it was nice to see the choir lined up waiting to walk in during the first song.  We all managed to get in and sit down in the last pew as "All Come all Ye Faithful" was being sung.  I was sitting next to my dad who was belting the song out with all his might.  I found myself with tears in my eyes as I looked around at the people who had been in this church since I was a little girl.  I looked up at the familiar structure, remembering all the times I did the same waiting for that long sermon to finally end when I was a kid.  Hanging from the beams were Christmas banners.  And they were the ones our youth group made  when I was in middle school.


And as we sang, I looked at the Advent tree and candle that were there every single season when I was growing up.


In fact, little had changed.  The pastor was different but the Christmas message was still the same.   I knew all the words to the carols that we had sung year there year after year.  And for that moment all was good.  And for that hour I felt more settled than I had in a long time.


After the service we went home and had dessert.  My dad, not liking to vary from his nine o'clock bed time turned down the sheets shortly after.  Soon the house was quiet.  I thought about all the Christmas Eves I spent growing up.  It was my favorite day.  And, I imagine, one day, it will be again.  Life changes and not always the way we want it to.  My parents dementia will progress and this is possibly the last year that they will be able to make the trip to my house. My mother is becoming more physically frail.  My dads dementia seems to be on the fast track lately.    I tried to think of that but admit that I still became impatient and a little angry when they weren't excited about their gifts.  Matt reminds me that they can't help it.  And, I know they can't. 


But last night at church was nice and my memories of my life growing up there are precious.  Merry Christmas to everyone there who is a huge part of my past.  Merry Christmas Matt, I love you and the new memories we are making.  Merry Christmas Luke, I love you and miss you.   Merry Christmas to all my friends who make my life so full.  


Merry Christmas Mom and Dad.


Thank you for a childhood full of warm and fuzzy Christmas memories. 

Friday, December 20, 2013

I'll Have a Blue Christmas Without You

When Luke was ten or twelve, or something like that, he wanted a Play Station 2 for Christmas.  So did his best buddy, Kyle.  That is all they talked about, thought about and dreamt about for months.  Luke would lay in bed at night before he went to sleep and pretend he was holding the controller and move his fingers really fast.  He was "practicing" he said, for when he got his PS2.  He even had pictures of it from the Sunday ads in the Kalamazoo Gazette taped to his bedroom door.

I had done extra work at flu shot clinics that year for money for Christmas.  Luke's dad and I decided that we would purchase the Play Station for him.  We bought it at Sams Club, I remember.  It had the actual Play Station, a couple of controllers, and a few starter games.  I knew how excited my boy would be on Christmas morning and couldn't wait to see his face when he came racing out of his bedroom and found it under the tree.

But after I thought about it for a while, I didn't want the gift to be from Santa.  After all, he hadn't given flu shots to 80 grown people who were all afraid of needles.  I did.  So it was decided that the Play Station would come from Mom and Dad.   Luke was playing Roller Hockey that year and was in need of some equipment.  Santa would buy the hockey stick, pants and jersey.



Feeling happy with my decision, I wrapped the Play Station and put a tag on it that read "to Mom and Dad From Andrea" as I knew that Luke would be snooping.  Sure enough, as soon as he spotted the large box under the tree, he immediately began to investigate.  He asked me what was in it and I said it was new pots and pans for Grandma and Grandpa.  And, just as I knew he would, he promptly forgot about the box.

Christmas Eve night I put my boy to bed and kissed him goodnight.  He was lying there, fingers flying over the imagined Play Station controller,  practicing for the next day.  He was sure his dream would come to fruition and he would be finally holding  a real one.   After Luke finally went to sleep, his Santa gifts were put out (unwrapped, following Simmons tradition), and his stocking was filled.

The next morning his dad and I were sitting in living room as we heard him start to stir.  Realizing it was Christmas morning, his feet hit the floor and he came bounding out of his room and stopped in front of the tree where his brand new hockey gear was set out.  It took a moment for it to register that Santa didn't bring him a Play Station and thought that perhaps he needed hockey shorts and a jersey more.  He stood there, not saying a word then turned and walked into the dining room.  I followed him out and found him standing there trying very hard not to cry.  I bent over and put my arm around him and asked "what's wrong?"  He looked up at me with tears in his big brown eyes and said "what kind of Santa gives a kid clothes?"

Oh, I felt terrible.  My poor little boy was trying so hard not to cry.  I quickly lead him over to the wrapped box of "pots and pans for Grandma" and tore that tag off to reveal a new tag underneath that read "To Luke from Mom and Dad."  It took him a minute to figure out what was going on, but then he quickly ripped the wrapping paper off the box to reveal the long awaited Play Station 2.  Taking a few precious seconds to call Kyle and confirm that he had also received one, Luke and his dad set it up.  Luke did end up spending a very Merry Christmas realizing that dreams do come true, even with a false start or two.

So, fast forward about ten years.  Luke is twenty and living in Kansas City and working for the railroad, which runs 24/7.  This means that he will not be home for Christmas.  And since I this is my year to work on Christmas Day, I won't be going to see him.   The very first time we will be apart on Christmas.  And for this reason I have been drinking too much coffee,  going through old pictures, and shedding a tear or ten.   Would I share a couple you ask?  Why yes, I would love to.

Here he is, probably about five.  


He loved to wear a suit.  


And when he wasn't wearing a suit.....


He was dressing like a police officer.  I believe that some of the clothing was interchangeable.

This was our first Christmas in our new house.  


We had a beautiful real tree for several years.  Finally when I decided to go with an artificial one, Luke declared that I had "ruined Christmas."  He soon got over it.

And of course the yearly pose with Chandler and Chelsea.


It would be hard to get them all in the same place at once now.

Here is one when he was five posing with "Cold Cal."                      


Look at him in that Carhartt.
  
This one is at a family Christmas party


 with my cousin Amy's kids, Katy and Derrick.


And this one of my sweet little boy....


I need more coffee.......